Initial validation of a healthcare needs scale for young people with congenital heart disease

Chi Wen Chen*, Ciao Lin Ho, Wen Jen Su, Jou Kou Wang, Hung Tao Chung, Pi Chang Lee, Chun Wei Lu, Be Tau Hwang

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

6 Scopus citations

Abstract

Aim: To validate the initial psychometric properties of a Healthcare Needs Scale for Youth with Congenital Heart Disease. Background: As the number of patients with congenital heart disease surviving to adulthood increases, the transitional healthcare needs for adolescents and young adults with congenital heart disease require investigation. However, few tools comprehensively identify the healthcare needs of youth with congenital heart disease. Design: A cross-sectional study was employed to examine the psychometric properties of the Healthcare Needs Scale for Youth with Congenital Heart Disease. Methods: The sample consisted of 500 patients with congenital heart disease, aged 15–24 years, from paediatric cardiology departments and covered the period from March–August 2015. The patients completed the 25-item Healthcare Needs Scale for Youth with Congenital Heart Disease, the questionnaire on health needs for adolescents and the WHO Quality of Life-BREF. Reliability and construct, concurrent, predictive and known-group validity were examined. Results: The Healthcare Needs Scale for Youth with Congenital Heart Disease includes three dimensions, namely health management, health policy and individual and interpersonal relationships, which consist of 25 items. It demonstrated excellent internal consistency and sound construct, concurrent, predictive and known-group validity. Conclusion: The Healthcare Needs Scale for Youth with Congenital Heart Disease is a psychometrically robust measure of the healthcare needs of youth with congenital heart disease. It has the potential to provide nurses with a means to assess and identify the concerns of youth with congenital heart disease and to help them achieve a successful transition to adult care.

Original languageEnglish
Pages (from-to)223-231
Number of pages9
JournalJournal of Advanced Nursing
Volume74
Issue number1
DOIs
StatePublished - Jan 2018

Keywords

  • congenital heart disease
  • healthcare needs
  • instrument validation
  • nursing
  • youth

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